Tuesday, May 21, 2013

4th May to 21st May 2013

4th May 2013
Last night when Merry attempted to turn off our gas heater that we have now used for the last seven days, it wouldn’t let her.   It wouldn’t let Barry turn it off either so he turned the bottle off to kill it.  Later in the night he was able to turn it off so it seems that something expands with the heat and stops the control knob from turning.  It did it again in the morning so Merry phoned the shop where we bought it and arranged to have it changed.  This meant driving to Carrum Downs on the other side of Melbourne, about 110km each way, so the $129 heater has now cost us about $50 in fuel and toll road fees to get it replaced.  If the replacement does the same thing in a week’s time, or any other time, it will hit the rubbish tip rather than cost another $50, and use that money towards something else unless the Primus sales rep comes to us.  We sent a text message to Sue wishing her a happy birthday, which seems to be the modern, totally impersonal, way of communication.
7th May 2013
So far the new heater hasn’t let us down but it is still a bit early yet. Merry has now had four of her radiation treatments that now take approximately two minutes time now that the initial two visits are over.  During those visits they have to take X-rays to study to ensure the alignment with the target is correct and make necessary adjustments to the mask that holds her head in place, and still.  It is just unfortunate that she has to travel for about 1.5 hours each way to receive the treatment.  Next week she moves into one of their hostels that will put her much closer and will be able to travel on the trams.  This will be much better for especially when the treatment becomes twice a day with six hours between them, but the hospital is trying to get her into one of the hospital accommodations alongside the hospital and possibly into hospital for the final week
9th May 2013
Merry’s treatment is still going okay and has confirmed the accommodation for Sunday.  Barry and Foxy will be able to maintain their 4kms morning walk along with Steve and his dog Badger, and his sister’s dog Toby on Thursdays. 
12th May 2013
Barry took Merry into Ryder-Cheshire House and settled her in.
13th and 14th May 2013
Merry is managing by herself at the Ryder-Cheshire House which has included a trip to a 3D movie.
17th May 2013
Barry drove down to the Ryder-Cheshire House to bring Merry home for the weekend.  Her twice a day treatment starts on Wednesday so Barry will move in with her as it is expected to make her more tired than she currently is. 
18th May 2013
Whilst here in Wooden, Merry is cooking a variety of stews, one which will provide for tonight’s meal and the remainder will be put into a blender to make it virtually drinkable.  The other stew will suffer the same fate so that Merry can eat/drink them next week as swallowing is becoming an uncomfortable exercise.  It currently feels similar to having tried to swallow a large pill that has chosen to lodge in the throat.
19th Nay 2013
Barry drove Merry back to Ryder-Cheshire house and moved in as well.
20th May 2013
Barry went into the hospital with Merry in the ambulance as Merry had an early appointment and would probably be out again very quickly.  That didn’t happen as the ambulance was late doing the pick-up and got to the hospital late and then waited more than an hour before having her treatment, which was quick but they arranged for her to see the nurse because drinking water was becoming a problem.  This led to her seeing a doctor who has now prescribed Morphine to make it easier to eat and drink as she is not allowed to lose weight because that affects the fit of the face mask that holds her head still during the treatment and accuracy is vital.
21st May 2013
Having now tried using the liquid and tablet morphine, eating and drinking is marginally better at this point in time

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